Fun fact about American health care: if I ever need an organ transplant, I’ll somehow have to hide my autism, depression, and anxiety from the doctors, or else I’ll be disqualified under ideas about quality of life. It’s really great to know how valued disabled and neurodivergent lives are.
This is a very important issue, and has been one of the policy focuses we’ve had in the past year or so. There are some states trying to push through non-discrimination policies for transplants. For example, Paul’s Law in PA would, if passed, prevent mental and developmental disabilities from being used as a reason to deny a transplant. (Paul was a young autistic adult who was denied a heart transplant on the basis of being autistic.)
But it will take a lot of support to get these passed and in the meantime so many of us are at risk.
Thank you for this post, sanityscraps.